Dana lives in Seattle, and Tracie lives in Germany. We are businesswomen, writers and humorists. We write about life, dating, and today's modern women.
During his tearful monologue revealing that his baby was born with a congenital heart defect, Jimmy Kimmel said the surgeon “did some kind of magic I can’t even begin to explain…”
I know all too well the kind of ‘magic’ he’s talking about.
I am so very sorry that this malady has befallen his family, however I am thankful that he and his wife can use their platform to raise awareness for congenital heart disease which is the number one killer of babies worldwide. Did you know that each year over 1 million babies are born throughout the world with a CHD? This is indeed a global burden.
Today, May 4, is Heterotaxy Awareness Day. Heterotaxy is a disorder that results in certain organs forming on the opposite side of the body and is often accompanied by some sort of heart disease. It affects boys and girls equally, as well as all ethnic groups. And here is a staggering statistic: is estimated that for every 1,000,000 babies born, 4 of them will have Heterotaxy syndrome. That is 4 too many and my precious son who is courageous enough to love flyboarding, is one of the four. It is so very fitting for him that the etymological meaning of the word ‘courageous’ is heart. The details about our journey are laid bare in my book, Incompatible with Nature–A Mother’s Story. It is a salute to my son and to all warrior babies.
There are 40 different types of congenital heart defects. Little is known about the cause of most of them. There is no known prevention nor a cure for any of them. What we do know is that congenital heart defects occur frequently and are often life threatening, yet research into them is grossly underfunded in relation to the prevalence of the disease–and this is a fact in the developing world. Can you imagine the medical care not readily available in developing countries?
There are many organizations you can contact to lend your support to. In my book, I ask my readers to donate to UNICARP Hospital in Guatemala City, Guatemala. It is the first pediatric cardiac surgical care unit in the country. It was founded and is run by Dr. Aldo Castañeda, the 86 year old brilliant and loving surgeon who carried out my son’s third surgery and which ultimately saved his life.
There are angels amongst us. Be one. Please donate somewhere to help save a child’s life.
And, Jimmy, you and your wife put your boxing gloves on. You’re in for the fight of your lives…